FUCHS' CORNEAL DYSTROPHY
How You Can Help
There seems to be little or no printed literature available about the inherited eye disease called Fuchs' (FEWKS) Corneal Dystrophy or the corneal transplant procedure and healing. A few hundred of us "Fuchies" have joined in a support group called Fuchs' Friends, and we are hoping to provide supportive literature for doctors to give their patients, or perhaps we can get the attention of a medical entity that will offer to fill this need.
Here are four ways you can help accomplish this:
1. We have a booklet called "My Journey With Fuchs' Corneal Dystrophy, Diagnosis to Transplant." It is the story of the 25 year scenario of a typical Fuchs' patient from first diagnosis to eventually restored vision. For very little cost, you can buy this booklet HERE for yourself, members of your family, or for your eye doctor(s). Proceeds will be used to pay for domain name and webhosting for two websites designed to help Fuchs' patients and their families. Visit them and see for yourself:
http://www.fuchs-dystrophy.org/ One Person's Journey With Fuchs'
http://www.fuchs-dystrophy.com/ A Portal for Fuchs' Information
2. You can sponsor the printing and mailing of a copy of this booklet to one or more doctors, to a city or state of your choice if you wish, and we will have the book sent out with a notation that it was provided through your generosity. You may have your name listed on the booklet or remain anonymous. Order HERE or email webmaster@fuchs-dystrophy.org to make special arrangements. Our hope is that eye specialists who receive this booklet will want to order more copies for their Fuchs' patients.
3. You may purchase a CD from a talented musician who has offered to be our "Angel," David Folsom of Nashville, TN, and he will send you the CD and contribute the proceeds towards the printing and mailing of our booklet to doctors across the US. To help us in this way, order David's CD HERE. We are so lucky to have a person like David who wants to help. His music is beautiful, as is his heart.
4. You may make a contribution through the Amazon Honor System.
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To donate, simply use your mouse and 'click to give' and you will be taken to Amazon.com and they will handle and process your most generous donation. |
Everything about Fuchs' Friends support group has been a grass roots and
volunteer effort, and this is just one more step along our path of helping
the other "one percenters" to cope with this inherited eye disease. In
fact, considering how quickly our Fuchs' Friends group has grown to almost
500 sufferers, I wonder if it is ONLY 1% of the population who have Fuchs'?
Dorothy, co-founder of Fuchs' Friends
Internet support group for people
affected by Fuchs' Corneal Dystrophy